LONG COVID GROUPS WITNESS STATEMENTS
MODULE TWO
Our thanks go to the Long Covid community for sharing their lived experiences with our organisations throughout this process. If you haven't yet shared your experience, please take part in the listening project. Every Story Matters.
WHAT DO THE LONG COVID GROUPS WANT THE COVID-19 INQUIRY TO ANSWER?
The Long Covid Groups have six framework questions which must be answered in Module 2 of the Covid-19 Inquiry:
-
What the decision-makers understanding of long-term sequelae and Long Covid was;
-
What was the role of patient advocacy in the recognition and response to Long Covid;
-
Was there data collection and modeling of Long Covid;
-
Was the prevalence and the risk of Long Covid taken into account when decisions, like the imposition and then easing of non-pharmaceutical interventions, were adopted;
-
How - and to what extent - did decision-makers warn the public about the risk of developing Long Covid and take the disease into account in public health communications; and
-
Whether nearly 2 million adults and children suffering from Long Covid today was avoidable?
